AIDS Information Service
History
AIDS Information Service, national association of fight against the AIDS, national service of phone-tapping, was created by the French Agency of fight against AIDS (AFLS) in partnership with association ASSISTANCES. The AFLS, created in 1989, by the government had the role of bringing its logistical support for the organizations of ground and of coordinating the efforts of prevention of the AIDS. Convinced by Pierre Kneip (1944-1995), then voluntary person in charge of the telephone permanence of ASSISTANCES Ile-de-France, it wanted, following the example what was done already in several countries of Europe, supplementing the fight plan against the AIDS by setting up a national phone line in the form of a free number accessible 24:00 on 24 and 7 days a week.
The telephone experiment of ASSISTANCES
Sida Info Service profited from preliminary experiments as well with regard to the place of the phone-tapping in the fight against AIDS as from the point of view of the ethical concern on which its operation rests since its creation.
ASSISTANCES had as of 1985 organized a service of phone-tapping. Permanence functioned the every day of 19:00 to 23:00 As of 1988, the persons in charge of association had realized that they could not face any more the demand pull fault of subsidies. The public authorities, after a long silence, took conscience of the stake fully. Beginning 1990, the AFLS and Assistances wrote the schedule of conditions of the future service. In September 1990, the persons in charge and listening to them are recruited. Two months later, Sida Information Service takes down its first call, on Tuesday, November 13, 1990.
The Anonymity and the Confidentialité have defined for this day the fundamental ethics of listening in Sida Information Service. This ethical concern was present at the beginning of the fight against AIDS, because of the threat of social exclusion which doubled the biological threat, threatens particularly sensitive as for the respect of the private life. The ethics of AIDS Information Service is included/understood then also as a guarantee scheme which applies so much to the people who call than with the personnel of the line as a whole.
Pierre Kneip
Founder of AIDS Information Service, Pierre Kneip was the director of 1990 with 1995, date of his disappearance.
In 1985, little time after having learned its seropositivity, it joined association ASSISTANCES. For him, “the best way of not being insulated is to go up in first line and to be implied, closest to the information sources, of all that can help to include/understand and live”. Very quickly, it becomes listening with the telephone permanence of ASSISTANCES, voluntariate which it ensures during three years before becoming the person in charge Bénévole about it.
In March 1990, it is one of the organizers of the “General states - To live the AIDS” . This event constitutes the first public speech individuals touched by HIV. From March 1990 to the suspension of publication of Merry Foot Hebdo , it holds in alternation with Franck Arnal, a newspaper with several voices entitled the years AIDS . In November 1990, it founds Sida Information Service.
In spring 1994, Pierre Kneip is one of the craftsmen of the construction of the project Sidaction. In May 1994, it is named by the Prime Minister member of the National council of the AIDS where the quality of its ethical reflection is a priceless contribution.
Independent man, Pierre Kneip carried out, in the respect of the others, a permanent combat to make hear the voice of the people reached. Its remarks, its standpoint, its articles and its interventions media were an assistance to very many people in difficulty, well beyond the AIDS. The way of saying what arrived to him, made it possible much to be recognized. These are its qualities of man and his actions of Militant in favor of the fight against AIDS which took part, on February 1st 1993, with its nomination with the rank of Knight of the National order of the Merit.
Pierre Kneip is deceased AIDS, at the fifty years age, on December 2nd, 1995. The building of the national headquarter of association in Paris bears its name today.
Since the opening of the service, 12 paid, 19 voluntary volunteers died of the AIDS without counting all those which collaborated closely or by far in the good performance of AIDS Information Service.
A single number, a regionalized listening
As of its creation, Sida Information Service affirmed its will to be a service regionalized in order to be able to formulate answers given full details at the requests of appealing thanks to an excellent knowledge of the fight plan against the AIDS and, more largely, of the sanitary services and social. This step was based on the experiment of ASSISTANCES which, between 1985 and 1990, had set up a phone service starting from a certain number of its local committees.
Thus, as of the launching of the national phone line, Sida Information Service structured the service starting from eight regional poles of listening. This system ensures a relative proximity between the appealing one and listening to it, while preserving anonymity. Today five poles structure this regional establishment (Bordeaux, Grenoble, Montpellier, Paris and Strasbourg), and seven regional delegations (Cayenne, Lille, Nice, Marseilles, Nantes, Rheims and Rennes).
To adapt to the evolutions of the epidemic
Fifteen years of experience, more than 2.000.000 of phone interviews: the sum of knowledge acquired on lived of the women and the men who have recourse to Sida Information Service is considerable. During these same years, the epidemic of AIDS knew transformations, moving towards new groups of Population without to reduce its importance in the first infected groups.
As of 1993, it appeared necessary to develop, in parallel of the free and anonymous number of AIDS Information Service, of the particular devices.
Sida Info Service was on the whole of these creations the engine of this change, with many private partners as with the public authorities.
In 1993, Right AIDS Information; in 1996, HIV Information Looking after; in 1997, the Line Azure, Line 6 and the Life line; in 1999, Hepatitises Information Service; finally since 1993, the device Ecoute Health makes it possible Sida Information Service to answer urgencies as regards Public health, at the request of the secretariat of State to the Santé or of the various French medical agencies.
In May 2002, the line Contraception IVG Aquitaine is open: it is about a line of information, orientation and listening which is addressed to any person concerned with the Contraception or the Voluntary interruption of pregnancy. It is extended today to the area the Limousin .
Today this adaptation to the evolutions of the epidemic and certain problematic news of public health remains a priority granted to the missions. The needs for the public concerning the HIV evolve/move strongly, in particular because of the many technical projections (treatments, modes of Dépistage), but also because the epidemic continues, and that new categories in the population (migrants, women, heterosexuals) are increasingly concerned.
In addition, of new problems of public health new needs cause: some present similarities with the Infection to HIV (Hépatite S, Infections sexually transmissible), others appear punctually with sometimes a great acuity (contamination in medium of care).
Since 1997, Sida Information Service developed 3 Internet sites: www.sida-info-service.org, www.hepatites-info-service.org, www.ligneazur.org
The relative information with the rights of the patients is also a priority and is the subject of specific approaches among the actions of AIDS Information Service. To this end was launched in March 2004 the Droit device of the Patients Information.
Actions
Regional actions
Since 1990, association Sida Information Service is present on the whole of the national territory thanks to the establishment of poles of listening regional and departmental or regional delegations. This concern of being present at the local level, in particular in the areas most touched by the epidemic, answers the double objective of optimization of the services rendered at the national level and of notoriety of the phone services. This makes it possible Sida Information Service to be a true actor in the field of the public health, initiator of specific actions, as well at the regional level as departmental.
Bordeaux, Cayenne, Grenoble, Lille, Marseilles, Montpellier, Nantes, Nice, Paris, Rheims, Rennes and Strasbourg.
International actions
Created in 1998 and animated by our structure, European network ENAH federates the devices of Téléphonie social specific to VIH/sida in the Others country of Europe. It allows the co-operation and the division of experiments, as well as a better visibility at the European level. Within this framework, Sida Information Service resolutely took the party to engage of the international actions of transfer of competence and co-operation with partners external requiring a help either with the reinforcement of the existing telephone device, or with the creation of an autonomous service of listening.
Sida Info Service for example strongly supported (councils, technical assistance and formation) the creation of Hello Information AIDS to the Morocco in 2002. Several cooperative projects are today in parallel under development with the Cameroun, with the Kampuchea, in Poland and with the Mauritius.
In January 2004, Sida Information Service joined platform ELSA, originally Créée by five fight associations against the French AIDS in March 2002 with the financial support of the Ministry for Foreign Affairs.
Education acts
Since 1994, association is recognized like training company professional counsel and proposes, with the professionals and the associative medium, of the training courses related to our expertise, with listening, the relation of assistance, on the problems of VIH/sida, hepatitises, STI and the Sexualité.
Actions of restitution
To ensure its mission of restitution as well in the field of the HIV, hepatitises, STI, associated pathologies as contraception, IVG and sexuality, association Sida Information Service is based on the service evaluation and quality made up of a person in charge of service and four in charge with studies and research.
This service maintains a close link with the unit the services of association and more particularly with the teams of listening which collect the qualitative and quantitative data starting from cards of call.
Its action is registered in harmony with the strategies of action initiated by the Ministry for Health.
All the studies and publications of the Service Evaluation and Quality can be consulted on Internet site of AIDS Information Service
Phone services
Association offers a great number of phone services.
Services Internet
- sida-info-service.org
- hepatites-info-service.org
- ligneazur.org
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